Är glutenfrihet ett alternativ till dyr medicin vid mastcellsaktiveringssyndrom ?

[Erik 2]

Rapport idag:

 

"Behandlingen av den svåra och mycket sällsynta sjukdomen mastcellsaktiveringssyndrom, MCAS, kan komma att läggas ner. Den främsta orsaken är kostnaden. Medicineringen, som idag bara ges på Karolinska Universitetssjukhuset Huddinge kostar flera hundratusen kronor per år för varje patient, totalt runt fyra miljoner." http://sverigesradio.se/sida/artikel.aspx?programid=103&artikel=5801427

 

Det finns uppenbara likheter med celiaki, IBS och WDEIA. Hoppas att de låter dessa patienter testa glutenfrihet och att de screenas för celiaki och omega 5 gliadin antikroppar mm.

 

"Interestingly enough, since starting on this MCAS journey I have met about a dozen or so other women who have both celiac disease and MCAS. Many of us have found that our MCAS/histamine symptoms seem to spiral out of control after getting accidentally "glutened." DAO, the enzyme in our bodies that breaks down histamine, is produced in our digestive systems, so it does make sense that the gut damage we experience from gluten may lead to a decrease in DAO (and hence, our bodies getting overwhelmed with histamine that cannot be broken down). My gut instinct (no pun intended) is that many of us with celiac disease and non celiac gluten sensitivity have MCAS going on to some degree." http://www.celiac.com/gluten-free/blog/1038/entry-1931-mast-cell-activation-syndrome-madness/

 

According to the Mastocytosis Society Canada’s website, the most common symptoms of MCAS include the following:

Gastrointestinal symptoms, including nausea, vomiting, diarrhea, abdominal pain, bloating, and malabsorption* (sounds a lot like celiac and/or irritable bowel syndrome doesn’t it?)
Low blood pressure
Fatigue
Wheezing
Itching, flushing*, hives
Episodes of fainting or dizziness
Bone pain
Cognitive impairment (brain fog)*
Anxiety
Rapid weight gain or loss
Anaphylaxis
Chest pain and/or a racing heart
Sensitivity to sunlight

Common triggers for mast cell degranulation in those of us with MCAS include the following:
insect stings
pain medications such as NSAIDs and narcotics
foods and drinks that are high in histamine or are known to trigger histamine release
extreme temperatures, both hot and cold
exercise
strong scents including perfumes and chemicals
friction, pressure, or vibration on the skin
emotional and physical stress